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Respondent burden and patient‐perceived validity of the PDQ‐39
Author(s) -
Kim M.Y.,
Dahlberg A.,
Hagell P.
Publication year - 2006
Publication title -
acta neurologica scandinavica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.967
H-Index - 95
eISSN - 1600-0404
pISSN - 0001-6314
DOI - 10.1111/j.1600-0404.2005.00549.x
Subject(s) - respondent , psychology , clinical psychology , medicine , law , political science
Objectives – To evaluate the respondent burden and patient‐perceived content validity of the Parkinson's disease (PD)‐specific health status questionnaire PDQ‐39, and the linguistic validity of its revised Swedish version. Materials and methods – Eighteen PD patients completed the revised Swedish version of the PDQ‐39. Respondent burden was assessed by recording the time taken to complete the questionnaire. Content and linguistic validity was evaluated qualitatively. Results – Patients with mild, moderate and advanced PD needed a mean time of 9.5, 11.3 and 20.1 min, respectively, to complete the PDQ‐39. One‐third of the patients identified irrelevant items and 50% identified important health‐related areas that were missing. Revisions had eliminated previous linguistic problems with the Swedish PDQ‐39. Conclusions – Undue respondent burden challenged the appropriateness of the PDQ‐39 among patients with more advanced disease. Overall content validity was acceptable but compromised by lack of important content areas. Observations supported the linguistic validity of the revised Swedish PDQ‐39.