Premium
Factors That Influence Characteristics of Genetic Biobanks
Author(s) -
Sanner Jennifer E.,
Frazier Lorraine
Publication year - 2007
Publication title -
journal of nursing scholarship
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.009
H-Index - 80
eISSN - 1547-5069
pISSN - 1527-6546
DOI - 10.1111/j.1547-5069.2007.00139.x
Subject(s) - biobank , ethnic group , logistic regression , race (biology) , medicine , demography , population , gerontology , environmental health , bioinformatics , biology , political science , botany , sociology , law
Purpose: To identify demographic differences between patients who choose participation and patients who choose nonparticipation in genetic biobanks, and to explore reasons for nonparticipation.Design: Prospective study of hospitalized cardiovascular patients approached to participate in a genetic biobank, 300 nonparticipants and 299 participants, in the southwestern US.Methods: Reasons for nonparticipation were explored. Logistic regression was performed to determine if gender, race or ethnicity, or age predicted nonparticipation.Findings: Race or ethnicity and age were significantly different between participants and nonparticipants, but gender was not. Blood‐sample collection was the main reason for declining participation.Conclusions: Minority and older adults were less likely to participate. Understanding reasons for nonparticipation in this group might aid in the development of methods used to obtain a diverse population in biobanks.