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Pregnancy registries: Differences, similarities, and possible harmonization
Author(s) -
Tomson Torbjörn,
Battino Dina,
Craig John,
HernandezDiaz Sonia,
Holmes Lewis B,
Lindhout Dick,
Morrow Jim,
French Jacqueline
Publication year - 2010
Publication title -
epilepsia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.687
H-Index - 191
eISSN - 1528-1167
pISSN - 0013-9580
DOI - 10.1111/j.1528-1167.2010.02525.x
Subject(s) - harmonization , pregnancy , medicine , epilepsy , family medicine , pediatrics , psychiatry , genetics , physics , acoustics , biology
Summary Epilepsy and pregnancy registries have been operational for more than 10 years, have accrued considerable experience, and collected an impressive amount of data. As findings have been published, it has become important to understand how observations from the different registries are comparable, especially since their methodologies differ somewhat. In September 2008, representatives of the UK Epilepsy and Pregnancy Register, the North American AED Pregnancy Registry (NAAPR), and the European and International Registry of Antiepileptic Drugs in Pregnancy (EURAP) met for a workshop. Their objectives were to exchange information on their methodologies and to discuss areas where harmonization might be possible. This report summarizes these discussions.