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Procedure for Developing a Quality‐of‐Life Measure for Epilepsy Surgery Patients
Author(s) -
Vickrey Barbara G.
Publication year - 1993
Publication title -
epilepsia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.687
H-Index - 191
eISSN - 1528-1167
pISSN - 0013-9580
DOI - 10.1111/j.1528-1157.1993.tb05912.x
Subject(s) - epilepsy surgery , epilepsy , quality of life (healthcare) , reliability (semiconductor) , measure (data warehouse) , psychometrics , medicine , test (biology) , psychology , physical therapy , clinical psychology , psychiatry , computer science , data mining , paleontology , power (physics) , physics , nursing , quantum mechanics , biology
Summary: In 1990, the NIH Consensus Conference Panel on epilepsy surgery called for the development and use of reliable and valid health‐related quality‐of‐life (HRQOL) measures in epilepsy surgery studies. A HRQOL measure for epilepsy surgery patients has been developed and evaluated. The procedure, which could also be used to develop HRQOL measures for other neurological diseases, entails the following steps: (a) specify desired characteristics of the measure; (b) identify relevant HRQOL areas by reviewing the literature; (c) assemble generic core items and disease‐specific supplementary items; (d) pilot test and revise the measure; (e) administer revised measure items to a large sample of epilepsy surgery patients; (f) perform item analysis to evaluate hypothesized item placement within scales; and (g) assess the reliability and validity of the scales. The product of this process, the Epilepsy Surgery Inventory (ESI)‐55, is a self‐report measure of 11 dimensions of HRQOL. It is brief, comprehensive, and reliable; preliminary evidence supports its validity.