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Developing the evidence base of patient and public involvement in health and social care research: the case for measuring impact
Author(s) -
Staniszewska Sophie,
Adebajo Ade,
Barber Rosemary,
Beresford Peter,
Brady LoucaMai,
Brett Jo,
Elliott Jim,
Evans David,
Haywood Kirstie L.,
Jones David,
Mockford Carole,
Nettle Mary,
Rose Diana,
Williamson Tracey
Publication year - 2011
Publication title -
international journal of consumer studies
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.775
H-Index - 71
eISSN - 1470-6431
pISSN - 1470-6423
DOI - 10.1111/j.1470-6431.2011.01020.x
Subject(s) - base (topology) , social care , health care , public health , psychology , sociology , public relations , medicine , nursing , political science , economic growth , economics , mathematical analysis , mathematics
While patient and public involvement (PPI) in health and social care research has progressed successfully in the last decade, a range of difficulties with the evidence base exist, including poor understanding of the concept of impact, limited theorization and an absence of quantitative impact measurement. In this paper, we argue that a paradigm change towards robust measurement of the impact of involvement in research is needed to complement qualitative explorations. We argue that service users should be collaboratively involved in the conceptualization, theorization and development of instruments to measure PPI impact. We consider the key advantages measurement would bring in strengthening the PPI evidence base through a greater understanding of what works, for whom, in what circumstances and why.