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Challenges and opportunities for children with disabilities in Europe: The future role and development of the voluntary sector
Author(s) -
Russell Philippa
Publication year - 1997
Publication title -
developmental medicine and child neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.658
H-Index - 143
eISSN - 1469-8749
pISSN - 0012-1622
DOI - 10.1111/j.1469-8749.1997.tb12293.x
Subject(s) - psychological intervention , psychology , voluntary sector , stigma (botany) , developmental psychology , psychiatry , public relations , political science
The most important thing to remember is that ichen a disabled child is born, that child is a child first to hisor her Jamily. My son John is not a congenital abnormality he is not a burden (though he is sometimes a challenge);he is not my fault. I do not want professionals toocer‐burden me with programmes, interventions, promises they cannot keep.I want realism;sensitivity; recognition of our, family life styles and alxrce all else, a regard for Johnasa child. It is his well‐be. Ivgnothis disablity. Which affects all oure rery day lives We handle,) need professionals but we also nee a “ordinary lives‘. It is hard to adapt to a lift’ which has no pricacy, where, we know we. will be carers for life, and when we fear that our child may always facelmc expectations and stigma because, he. is disabled.