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Special care?
Author(s) -
Hunt Ann
Publication year - 1986
Publication title -
journal of the british institute of mental handicap (apex)
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.633
H-Index - 39
eISSN - 1468-3156
pISSN - 0261-9997
DOI - 10.1111/j.1468-3156.1986.tb00358.x
Subject(s) - respite care , interview , medicine , family medicine , tuberous sclerosis , nursing , pediatrics , psychiatry , sociology , anthropology
SUMMARY The community services received by 67 children severely handicapped by tuberous sclerosis were investigated by interviewing their parents. 60 per cent of the children at school were in special care units, and 81 per cent had multiple handicaps. 25 per cent of parents had no contact with community services, and 45 per cent no contact with a social worker. This had implications for the large number of parents who did not receive respite care. It was more difficult for adults with multiple handicaps to receive care in the community.