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Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities: Perceptions of Challenging Behaviour and Family Impact
Author(s) -
Hatton Chris,
Emerson Eric,
Kirby Suzanne,
Kotwal Homayra,
Baines Susannah,
Hutchinson Christine,
Dobson Catherine,
Marks Bob
Publication year - 2010
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/j.1468-3148.2009.00544.x
Subject(s) - ethnic group , perception , intellectual disability , psychology , context (archaeology) , interpretative phenomenological analysis , family support , developmental psychology , social psychology , qualitative research , sociology , medicine , psychiatry , paleontology , social science , neuroscience , anthropology , biology , physical therapy
Background A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour. Methods Semi‐structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis. Results Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences. Conclusions ‘Challenging behaviour’ services need to be considered within a much broader social and community context.