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Choosing embryos: ethical complexity and relational autonomy in staff accounts of PGD
Author(s) -
Ehrich Kathryn,
Williams Clare,
Farsides Bobbie,
Sandall Jane,
Scott Rosamund
Publication year - 2007
Publication title -
sociology of health and illness
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.146
H-Index - 97
eISSN - 1467-9566
pISSN - 0141-9889
DOI - 10.1111/j.1467-9566.2007.01021.x
Subject(s) - autonomy , specialty , face (sociological concept) , frame (networking) , preimplantation genetic diagnosis , selection (genetic algorithm) , psychology , social psychology , sex selection , bioethics , sociology , political science , social science , genetics , biology , embryo , computer science , telecommunications , demography , artificial intelligence , psychiatry , law
The technique of preimplantation genetic diagnosis (PGD) is commonly explained as a way of checking the genes of embryos produced by IVF for serious genetic diseases. However, complex accounts of this technique emerged during ethics discussion groups held for PGD staff. These form part of a study exploring the social processes, meanings and institutions that frame and produce ‘ethical problems’ for practitioners, scientists and others working in the specialty of PGD in the UK. Two ‘grey areas’ raised by staff are discussed in terms of how far staff are, or in the future may be, able to support autonomous choices of women/couples: accepting ‘carrier’ embryos within the goal of creating a ‘healthy’ child; and sex selection of embryos for social reasons. These grey areas challenged the staff's resolve to offer individual informed choice, in the face of their awareness of possible collective social effects that might ensue from individual choices. We therefore argue that these new forms of choice pose a challenge to conventional models of individual autonomy used in UK genetic and reproductive counselling, and that ‘relational autonomy’ may be a more suitable ethical model to describe the ethical principles being drawn on by staff working in this area.