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PRIVACY AND DISCLOSURE IN MEDICAL GENETICS EXAMINED IN AN ETHICS OF CARE
Author(s) -
WERTZ DOROTHY C.,
FLETCHER JOHN C.
Publication year - 1991
Publication title -
bioethics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.494
H-Index - 55
eISSN - 1467-8519
pISSN - 0269-9702
DOI - 10.1111/j.1467-8519.1991.tb00161.x
Subject(s) - medical genetics , medical ethics , internet privacy , medical care , psychology , genetics , medicine , family medicine , computer science , biology , psychiatry , gene
The progress of genetic knowledge magnifies existing ethical problems in medical genetics. Among the most troubling types of problems -- for medicine, patients, and the larger society -- are those of privacy and disclosure. Examples of the range of problems involving privacy and disclosure are: 1) disclosure of false paternity to an unsuspecting husband; 2) disclosure of a patient's genetic make-up to his or her unknowing spouse; 3) disclosure of information, against a patient's wishes, to relatives at genetic risk; 4) disclosure of ambiguous test results; 5) disclosure of adventitious nonmedical information, e.g., fetal sex; and 6) disclosure to institutional third parties, such as employers and insurers....