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Parents of children with neurofibromatosis 1: Comparison of maternal and paternal responses
Author(s) -
Dylis AM
Publication year - 2005
Publication title -
nursing and health sciences
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.563
H-Index - 47
eISSN - 1442-2018
pISSN - 1441-0745
DOI - 10.1111/j.1442-2018.2005.00233_6.x
Subject(s) - neurofibromatosis , coping (psychology) , psychological intervention , developmental psychology , psychology , clinical psychology , medicine , psychiatry , radiology
Neurofibromatosis 1 (NF) is the most common single gene nervous system disorder. Prior adaptation research to a child's chronic illness has focused on maternal responses. Paternal/maternal comparison studies demonstrated contradictory and inconclusive findings (Katz, 2002), although Ablon (1996; 2000) documented NF gender differences. This study's purpose is to compare paternal/maternal responses from an international sample ( N = 337) of parents of children with NF. Parental gender had significant indirect effects on family functioning ( r = 0.27, P = 0.000) (Dylis, 2003). Independent T ‐tests in this ongoing secondary analyses revealed significant gender differences ( P = 0.000) in all coping subscales and uncertainty stress ( P = 0.009). These findings might assist in future development of individualized, gender specific parental adaptation interventions.