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Recurrence risk in Autism Spectrum Disorder: A study of parental knowledge
Author(s) -
Whitelaw Charlotte,
Flett Peter,
Amor David J
Publication year - 2007
Publication title -
journal of paediatrics and child health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.631
H-Index - 76
eISSN - 1440-1754
pISSN - 1034-4810
DOI - 10.1111/j.1440-1754.2007.01156.x
Subject(s) - medicine , autism spectrum disorder , autism , telephone interview , pediatrics , psychiatry , family medicine , social science , sociology
Aim: To describe recurrence risk information currently being obtained by families affected by Autism Spectrum Disorder (ASD). Methods: Structured telephone interview of parents of 21 children who received a diagnosis of ASD at Calvary Health Care Tasmania, Hobart, Australia between May 2005 and May 2006. Results: Only one of the 21 parents knew their true recurrence risk. Many overestimated their risk substantially, and in four cases this had led to a decision against increasing family size. Eleven parents said they had received no information about recurrence risk, and only one cited medical practitioners as a source of information about recurrence risk. Conclusion: Current provision of information about recurrence risk to families affected by ASD is inadequate.