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Assessing diabetes‐related quality of life of youth with type 1 diabetes in routine clinical care: the MIND Y outh Q uestionnaire ( MY ‐Q)
Author(s) -
Wit Maartje,
Winterdijk Per,
Aanstoot HenkJan,
Anderson Barbara,
Danne Thomas,
Deeb Larry,
Lange Karin,
Nielsen Anja Østergren,
Skovlund Soren,
Peyrot Mark,
Snoek Frank
Publication year - 2012
Publication title -
pediatric diabetes
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.678
H-Index - 75
eISSN - 1399-5448
pISSN - 1399-543X
DOI - 10.1111/j.1399-5448.2012.00872.x
Subject(s) - cronbach's alpha , medicine , type 1 diabetes , quality of life (healthcare) , diabetes mellitus , scale (ratio) , family medicine , clinical psychology , type 2 diabetes , gerontology , psychometrics , nursing , physics , quantum mechanics , endocrinology
Aim It is recommended to assess health‐related quality of life ( HRQoL ) in teenagers with diabetes as part of their ongoing medical care. Here, we describe the development and psychometric evaluation of the M onitoring I ndividual N eeds in D iabetes Y outh Q uestionnaire ( MY ‐Q), a multi‐dimensional self‐report HRQoL questionnaire designed for use in pediatric diabetes care. Design and methods In expert meetings, characteristics and domains of interest were defined. Existing questionnaires were reviewed, topics selected, and new items added, resulting in the 36‐item MY ‐Q. To test face validity, we interviewed 22 teenagers. In addition, 84 teenagers with type 1 diabetes (age 10–18 yr) completed the MY ‐Q and P ediatric Q uality of L ife I nventory ( PedsQL ) generic and diabetes‐modules to examine psychometric properties. Hemoglobin A1c ( HbA1c ) values were obtained by chart audit. Results The MY ‐Q consists of seven subscales (social impact, parents, diabetes control perceptions, responsibility, worries, treatment satisfaction, and body image and eating behavior) as well as general HRQoL and emotional well‐being. Cronbach's alpha for the total scale was 0.80. Strong correlations between MY‐Q total and PedsQL generic and diabetes‐module scores (r = 0.58 and r = 0.71, p < 0.001) confirmed concurrent validity. Higher HbA1c was associated with lower diabetes control perceptions (r = −0.35, p = 0.001), worries (r = −0.24, p = 0.029), and body image and eating behavior (r = −0.26, p = 0.019) scores. Younger age was associated with higher diabetes control perceptions (r = −0.26, p = 0.020) and body image and eating behavior (r = −0.23, p = .038), and lower responsibility (r = 0.25, p = 0.027) scores. Conclusion The MY‐Q is the first HRQoL questionnaire designed for use in clinical care. It has acceptable measurement properties and seems suitable for implementation in routine care of teenagers with diabetes.