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Identifying health‐related quality of life (HRQL) domains for multiple chronic conditions (diabetes, hypertension and dyslipidemia): patient and provider perspectives
Author(s) -
Bounthavong Mark,
Law Anandi V.
Publication year - 2008
Publication title -
journal of evaluation in clinical practice
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.737
H-Index - 73
eISSN - 1365-2753
pISSN - 1356-1294
DOI - 10.1111/j.1365-2753.2007.00933.x
Subject(s) - medicine , dyslipidemia , quality of life (healthcare) , diabetes mellitus , disease , family medicine , patient experience , qualitative research , disease management , patient education , exploratory research , health care , gerontology , nursing , social science , sociology , economic growth , parkinson's disease , anthropology , economics , endocrinology
Objective To examine patient and provider perspectives about the impact of having diabetes, hypertension and/or dyslipidemia (DHD) on health‐related quality of life (HRQL) in order to identify domains for an HRQL instrument focusing on specific chronic diseases (DHD). Study design Exploratory qualitative design was used to elicit patient and provider responses. Patient survey contained 11 demographic and nine content questions inquiring how the disease(s) affected patient HRQL. Provider survey examined how the disease(s) affected their patient's HRQL and crucial factors for improvement. Patients were included if they had DHD and spoke English. Providers working with DHD patients were identified among university faculty and community practitioners. Results Thirty‐eight patients (24.7%) completed the interviews. Three judges content analysed patient responses and proposed seven categories (patients ranked physical functioning first followed by diet, emotional well‐being (E), general well‐being, social functioning (S), ‘no change in HRQL’ and medications). One question about medications had four categories (medication inconvenience, medication side effects, forgetfulness and general well‐being). Index for reliability was greater than 80% for all categories. Providers ranked lifestyle modification (LM), first followed by complications, medication, self‐care, E, education, S, physical activity and resources (ability to pay) as components that impact HRQL. Conclusions Patient and provider perspectives were similar in four areas (E, S, medication and diet); however, the differences were in how these impacted HRQL – patients focused on activities relevant to daily life that were affected, while providers based it on processes of therapy management and self‐care (education and implementation of LM).