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What neurological patients regard as quality of life
Author(s) -
ENGSTRÖM BIRGITTA,
NORDESON ASTRID
Publication year - 1995
Publication title -
journal of clinical nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.94
H-Index - 102
eISSN - 1365-2702
pISSN - 0962-1067
DOI - 10.1111/j.1365-2702.1995.tb00203.x
Subject(s) - feeling , quality of life (healthcare) , rehabilitation , psychology , quality (philosophy) , medicine , nursing , social psychology , physical therapy , epistemology , philosophy
Summary• The aim of this study was to investigate how patients with progressive neurological disorders describe what they perceive as quality of life. • The patients (n = 169) were interviewed while staying at a neurological rehabilitation centre by way of an open question, what ‘quality of life’ represented to them. • Patients' statements were classified and a comparison was made with Kajandi's three levels of factors constituting quality of life. The categories that came forth were ‘living in a sense of affinity’, ‘being independent’, ‘living on one's own terms’ and ‘feeling that life is meaningful’. The statements constituting the basis of the categories were impressive and illustrated wisdom. • The results underline the uniqueness of each patient's situation, and how important it is that nursing and treatment are adjusted to the needs of the individual.