Agitation in dementia: concept clarification

Aim.  The aim of this paper is to clarify the concept of agitation in dementia through analysing definitions, critical attributes, components, boundaries, antecedents and consequences of agitation. Background.  The concept of agitation is not well defined. In addition, there exists much confusion about the characteristics and boundaries of agitation, as well as the distinction between agitation and related concepts. Recently developed theoretical models for agitation in dementia require new interpretation and conceptualization of agitation. Methods.  Morse's method of critical appraisal of the literature was used. In addition, some parts of Rodgers’ evolutionary method were employed. Data were selected using six electronic databases and the key words ‘agitation’, ‘agitated’, ‘dementia’, ‘demented’ and ‘Alzheimer’. The analysis included 86 empirical or theoretical papers and one book. Results.  A transition from the observer's perspective to the patient's perspective in the interpretation of agitation was found. Five critical attributes of agitation in dementia were identified: excessive, inappropriate, repetitive, non‐specific and observable. Patient factors, interpersonal factors, environmental factors and restraint were identified as precipitating antecedents. Mediating antecedents included discomfort, unmet need and misinterpretation. Consequences of agitation were identified at the levels of patient, caregiver and others. Conclusions.  This transition in perspectives has important implications as it can change health providers’ attitudes and responses to agitation and lead to patient‐focused and individualized care. Researchers and clinicians are encouraged to avoid labelling agitated behaviour as ‘disturbing behaviour’.