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Oral Health Care for Patients with Epidermolysis Bullosa ‐ Best Clinical Practice Guidelines
Author(s) -
Krämer Susanne M.,
Serrano María Concepción,
Zillmann Gisela,
Gálvez Pablo,
Araya Ignacio,
Yanine Nicolás,
CarrascoLabra Alonso,
Oliva Patricio,
BrignardelloPetersen Romina,
Villanueva Julio
Publication year - 2012
Publication title -
international journal of paediatric dentistry
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.183
H-Index - 62
eISSN - 1365-263X
pISSN - 0960-7439
DOI - 10.1111/j.1365-263x.2012.01247.x
Subject(s) - medicine , cinahl , medline , family medicine , guideline , epidermolysis bullosa , cochrane library , referral , health care , dentistry , randomized controlled trial , nursing , psychological intervention , surgery , dermatology , economics , economic growth , pathology , political science , law
International Journal of Paediatric Dentistry 2012; 22 (Suppl. 1): 1–35 Objective. To provide the users with information on the current best practices for managing the oral health care of people living with EB. Methods. A systematic literature search, in which the main topic is dental care in patients with Epidermolysis Bullosa, was performed. Consulted sources, ranging from 1970 to 2010, included MEDLINE, EMBASE, CINAHL, The Cochrane Library, DARE, and the Cochrane controlled trials register (CENTRAL). In order to formulate the recommendations of the selected studies the SIGN system was used. The first draft was analysed and discussed by clinical experts, methodologists and patients representatives on a two days consensus meeting. The resulting document went through an external review process by a panel of experts, other health care professionals, patient representatives and lay reviewers. The final document was piloted in three different centres in United Kingdom, Czech Republic and Argentina. Results. The guideline is composed of 93 recommendations divided into 3 main areas: 1) Oral Care ‐ access issues, early referral, preventative strategies, management of microstomia, prescriptions and review appointments‐, 2) Dental treatment: general treatment modifications, radiographs, restorations, endodontics, oral rehabilitation, periodontal treatment, oral surgery and orthodontics‐, and 3) Anaesthetic management of dental treatment. Conclusions. A preventive protocol is today's dental management approach of choice.