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Planning for the end of children's lives – the lifetime framework
Author(s) -
Finlay F.,
Lewis M.,
Lenton S.,
Poon M.
Publication year - 2008
Publication title -
child: care, health and development
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.832
H-Index - 82
eISSN - 1365-2214
pISSN - 0305-1862
DOI - 10.1111/j.1365-2214.2008.00843.x
Subject(s) - limiting , audit , best practice , delphi method , process (computing) , psychology , service (business) , clinical practice , delphi , nursing , process management , medicine , computer science , engineering , business , management , mechanical engineering , accounting , marketing , artificial intelligence , economics , operating system
Aim This paper describes the development of ‘a best practice framework’, following review of a sample of notes of children known to the Lifetime Service, where the child has a non‐malignant life limiting condition, to improve child and family engagement in the planning process at the end of life. Background There is very little literature about how to engage with families to decide end of life plans for children with life limiting conditions. Method An audit of clinical case notes was followed by the development of ‘a best practice framework’ through a Delphi process involving clinical practitioners. Results The 3 × 3 framework is presented to aid communication with parents and children at this difficult time of decision‐making. Conclusion This new framework has been well received by both parents and practitioners, and its use will be audited in the future.