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Support for family carers of children and young people with developmental disabilities and challenging behaviour
Author(s) -
McGill P.,
Papachristoforou E.,
Cooper V.
Publication year - 2006
Publication title -
child: care, health and development
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.832
H-Index - 82
eISSN - 1365-2214
pISSN - 0305-1862
DOI - 10.1111/j.1365-2214.2006.00600.x
Subject(s) - respite care , challenging behaviour , perception , family support , psychology , rationing , nursing , family member , medicine , psychiatry , family medicine , intellectual disability , health care , neuroscience , economic growth , economics , physical therapy
Background This study gathered information about perceptions of family carers of children and young people with developmental disabilities and challenging behaviour of the help, support and treatment received from services and professionals. Methods A total of 66 family carers completed postal questionnaires on the nature of, and their satisfaction with, services, professional help and advice received in respect of their family member's challenging behaviour. Results Most carers were dissatisfied with support and services received. Almost half reported receiving no professional input or none that was helpful. Over two‐thirds reported receiving respite care but, in a third of these, the child had been excluded because of challenging behaviour. Conclusions Families of children with challenging behaviour often do not receive services and supports that they find helpful. Treatments provided are not always evidence based. The ‘rationing’ of services creates a danger of inequality of access. We need a more proactive approach to identifying and meeting the need for family support.