Children and adolescents with brittle bones — psycho‐social aspects

Summary Osteogenesis imperfecta (OI) or brittle bones is a most unusual disease and there is a limited number of people in the whole world suffering from it. Most studies reported from this area are in the medical field and few illuminate the psycho‐social effects of the disease. Three studies of children and young people with brittle bones have been carried out within the psycho‐social field in Sweden. They are all based on inquiries and interviews with children and parents engaged in the Swedish National Organization for Physically Disabled Children and Adolescents.