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Other Voices, Other Rooms: Reflections on Talking to Young Men with Duchenne Muscular Dystrophy and Their Families About Transition to Adulthood
Author(s) -
Abbott David
Publication year - 2012
Publication title -
children and society
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.538
H-Index - 58
eISSN - 1099-0860
pISSN - 0951-0605
DOI - 10.1111/j.1099-0860.2012.00437.x
Subject(s) - duchenne muscular dystrophy , transition (genetics) , interview , meaning (existential) , qualitative research , developmental psychology , psychology , young adult , gender studies , sociology , medicine , psychotherapist , social science , biochemistry , chemistry , anthropology , gene
Research which involves disabled children and young people now constitutes a fairly well‐established body of work in the social sciences. However, discussion on the role of the (normally adult) researcher has arguably been marginalised in the much‐needed exploration of disabled children's ‘voices’. Drawing on a qualitative study of the transition to adulthood for young men with Duchenne muscular dystrophy, this paper reflects on the interview ‘encounter’ between the interviewer, young men and their families. It suggests that we may learn more about the experiences of disabled children and young people if we can find ways of describing the co‐production of responses, non‐responses and meaning within research interviews.