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Optimising participation of persons with cognitive impairment in a national dementia registry: challenges and solutions
Author(s) -
Lin Xiaoping,
Wallis Kasey,
Ahern Susannah,
Brodaty Henry,
Rowe Christopher,
Kain Barbara,
Lambourne Sally,
McNeil John,
Ward Stephanie A.
Publication year - 2021
Publication title -
internal medicine journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.596
H-Index - 70
eISSN - 1445-5994
pISSN - 1444-0903
DOI - 10.1111/imj.15357
Subject(s) - dementia , medicine , cognitive impairment , inclusion (mineral) , cognition , gerontology , quality of life (healthcare) , cognitive disabilities , quality (philosophy) , psychiatry , nursing , disease , psychology , social psychology , philosophy , epistemology , pathology
Clinical quality registries are increasingly utilised to monitor and improve healthcare quality. Opt‐out consent is recommended to maximise participation and ensure validity of data, however, presents specific considerations when including persons with impaired decision‐making abilities. This paper describes the innovative Australian Dementia Network Registry recruitment framework designed to optimise inclusion of people with dementia and mild cognitive impairment.