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Health data linkage research in Australia remains challenging
Author(s) -
Palamuthusingam Dharmenaan,
Johnson David W.,
Hawley Carmel,
Pascoe Elaine,
Fahim Magid
Publication year - 2019
Publication title -
internal medicine journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.596
H-Index - 70
eISSN - 1445-5994
pISSN - 1444-0903
DOI - 10.1111/imj.14244
Subject(s) - custodians , linkage (software) , medicine , value (mathematics) , record linkage , population health , research ethics , genetic data , public relations , data science , population , environmental health , political science , computer science , geography , biochemistry , chemistry , archaeology , machine learning , psychiatry , gene
Data linkage is a valuable technique for uniting information from multiple sources that relates to the same person, place, family or event. Despite its value, establishing such linkages in Australia remains challenging. Existing policies are a missed opportunity for research and innovation and engender a negative attitude among researchers when considering data linkage as a research means. Greater leadership from the Population Health Research Network and cooperation from data custodians and Human Research Ethics Committees are necessary to access optimally Australia’s enormous data potential.