Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital | Zendy

Anderson James | Zendy; Tay George | Zendy; Denby George | Zendy; Robinson Jan | Zendy; Douglas James | Zendy; Robinson Peter | Zendy; Curtin Deanne | Zendy

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Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital

Author(s) -

Anderson James,

Tay George,

Denby George,

Robinson Jan,

Douglas James,

Robinson Peter,

Curtin Deanne

Publication year - 2018

Publication title -

internal medicine journal

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.596

H-Index - 70

eISSN - 1445-5994

pISSN - 1444-0903

DOI - 10.1111/imj.14123

Subject(s) - multidisciplinary approach , medicine , neuromuscular disease , specialty , service delivery framework , service (business) , health care , disease , family medicine , medical emergency , nursing , marketing , social science , pathology , sociology , economic growth , economics , business

Patients with neuromuscular diseases benefit from coordinated multidisciplinary care to achieve best outcomes. The integration of multi‐specialty healthcare delivered in a single clinic can be challenging for service providers due to cost and resource limitation. Our cross‐sectional survey of 53 adult patients with neuromuscular disease across Queensland revealed only 27% support the introduction of an integrated multidisciplinary clinic. The most cited reason for opposition to a multidisciplinary clinic was a perceived loss of contact with one's usual doctor. Modifying service delivery in neuromuscular disease is a complex undertaking and will need input from numerous stakeholders.

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