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Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital
Author(s) -
Anderson James,
Tay George,
Denby George,
Robinson Jan,
Douglas James,
Robinson Peter,
Curtin Deanne
Publication year - 2018
Publication title -
internal medicine journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.596
H-Index - 70
eISSN - 1445-5994
pISSN - 1444-0903
DOI - 10.1111/imj.14123
Subject(s) - multidisciplinary approach , medicine , neuromuscular disease , specialty , service delivery framework , service (business) , health care , disease , family medicine , medical emergency , nursing , marketing , social science , pathology , sociology , economic growth , economics , business
Patients with neuromuscular diseases benefit from coordinated multidisciplinary care to achieve best outcomes. The integration of multi‐specialty healthcare delivered in a single clinic can be challenging for service providers due to cost and resource limitation. Our cross‐sectional survey of 53 adult patients with neuromuscular disease across Queensland revealed only 27% support the introduction of an integrated multidisciplinary clinic. The most cited reason for opposition to a multidisciplinary clinic was a perceived loss of contact with one's usual doctor. Modifying service delivery in neuromuscular disease is a complex undertaking and will need input from numerous stakeholders.