Premium
Examining patients' preferences for participation in clinical decision‐making: the experience in a L atin A merican chronic obstructive pulmonary disease and cancer outpatient population
Author(s) -
Jordan P.,
Quadrelli S.,
Heres M.,
Belli L.,
Ruhl N.,
Colt H.
Publication year - 2014
Publication title -
internal medicine journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.596
H-Index - 70
eISSN - 1445-5994
pISSN - 1444-0903
DOI - 10.1111/imj.12351
Subject(s) - medicine , copd , pulmonary disease , population , cancer , disease , family medicine , prospective cohort study , outpatient clinic , patient participation , lung cancer , physical therapy , medline , environmental health , political science , law
Background and Aims It is generally accepted that patients prefer to be told the truth by their physicians; however, the practice of partial truth‐telling is frequent with an existing ‘norm of nondisclosure.’ Our primary objective was to determine what patients wanted to be told about their illness, and whether there might be differences between patients with either cancer or advanced chronic obstructive pulmonary disease ( COPD ). A second objective was to determine how these patients envisioned their participation, or lack thereof, in the treatment decision‐making process. Methods Subjects were eligible for this prospective study if they were attending the oncology or pulmonary outpatient consultation services at the B ritish H ospital or the S anatorio G üemes P rivate H ospital in B uenos A ires, A rgentina between J une 2009 and M ay 2010. Results Ninety‐nine patients were recruited. Forty‐four had a diagnosis of COPD , and 55 patients had cancer. Seventeen of the patients expected their health to improve in the future, but a significantly higher proportion of patients with malignant disorders expected to get better in the near future as compared with those with COPD (98.2% vs 62.8%, P < 0.001). Most study participants expressed a desire to receive all the information available about their condition. A majority of the participants expressed a preference for making treatment decisions in collaboration with their physician (40.4%) Conclusions While they considered the role of their families relevant and wanted information to be shared so that family members might participate in decision‐making, they did not want their families to have a right to withhold information, make final decisions.