Open AccessDiabetes‐related complications: Which research topics matter to diverse patients and caregivers?
Author(s) -
Dogba Maman Joyce,
Dipankui Mylène Tantchou,
Chipenda Dansokho Selma,
Légaré France,
Witteman Holly O.
Publication year - 2018
Publication title -
health expectations
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.314
H-Index - 74
eISSN - 1369-7625
pISSN - 1369-6513
DOI - 10.1111/hex.12649
Subject(s) - focus group , diabetes mellitus , gerontology , medicine , research design , qualitative research , population , diabetes management , type 2 diabetes , disease , family medicine , psychology , environmental health , pathology , sociology , social science , anthropology , endocrinology
Background Diabetes is a chronic disease with increasing prevalence worldwide. Although research has improved its treatment and management, little is known about which research topics matter to people living with diabetes, particularly among under‐represented groups. Objectives To explore the importance of research topics among a diverse range of people living with any type of diabetes or caring for someone living with any type of diabetes. Methods We used a convergent mixed‐method design with quantitative and qualitative aspects. We surveyed a national sample of people living with diabetes and caregivers of people with diabetes, asking them to rate the importance of 10 predetermined important research topics. We also held three focus groups in two major cities to explore research concerns of people who are under‐represented in research. Results 469 adults (57% men, 42% women) in Canada completed the online survey, indicating that all 10 areas of research mattered to them, with the highest ratings accorded to preventing and treating kidney, eye and nerve complications. Fourteen individuals participated in three focus groups and similarly noted the importance of research on those three complications. Additionally, focus group participants also noted the importance of research around daily management. No new topics were identified. Conclusions This study confirmed the importance of research topics among a population of people living with or caring for someone with diabetes. Findings from this study were used to inform the vision for Diabetes Action Canada—a pan‐Canadian Strategy for Patient‐Oriented Research ( SPOR ) Network on diabetes and its complications.