Open AccessAn empirically based conceptual framework for fostering meaningful patient engagement in research
Author(s) -
Hamilton Clayon B.,
Hoens Alison M.,
Backman Catherine L.,
McKin Annette M.,
McQuitty Sha,
English Kelly,
Li Linda C.
Publication year - 2018
Publication title -
health expectations
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.314
H-Index - 74
eISSN - 1369-7625
pISSN - 1369-6513
DOI - 10.1111/hex.12635
Subject(s) - conceptualization , thematic analysis , conceptual framework , perspective (graphical) , qualitative research , relevance (law) , psychology , knowledge management , patient experience , health care , computer science , sociology , social science , artificial intelligence , political science , law , economics , economic growth
Background Patient engagement in research ( PEIR ) is promoted to improve the relevance and quality of health research, but has little conceptualization derived from empirical data. Objective To address this issue, we sought to develop an empirically based conceptual framework for meaningful PEIR founded on a patient perspective. Methods We conducted a qualitative secondary analysis of in‐depth interviews with 18 patient research partners from a research centre‐affiliated patient advisory board. Data analysis involved three phases: identifying the themes, developing a framework and confirming the framework. We coded and organized the data, and abstracted, illustrated, described and explored the emergent themes using thematic analysis. Directed content analysis was conducted to derive concepts from 18 publications related to PEIR to supplement, confirm or refute, and extend the emergent conceptual framework. The framework was reviewed by four patient research partners on our research team. Results Participants’ experiences of working with researchers were generally positive. Eight themes emerged: procedural requirements, convenience, contributions, support, team interaction, research environment, feel valued and benefits. These themes were interconnected and formed a conceptual framework to explain the phenomenon of meaningful PEIR from a patient perspective. This framework, the PEIR Framework, was endorsed by the patient research partners on our team. Conclusions The PEIR Framework provides guidance on aspects of PEIR to address for meaningful PEIR . It could be particularly useful when patient‐researcher partnerships are led by researchers with little experience of engaging patients in research.