Open AccessFacilitating psychosexual adjustment for women undergoing pelvic radiotherapy: pilot of a novel patient psycho‐educational resource
Author(s) -
Lubotzky Franchelle,
Butow Phyllis,
Nattress Kathryn,
Hunt Caroline,
Carroll Susan,
Comensoli Andrew,
Philp Shan,
Juraskova Ilona
Publication year - 2016
Publication title -
health expectations
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.314
H-Index - 74
eISSN - 1369-7625
pISSN - 1369-6513
DOI - 10.1111/hex.12424
Subject(s) - psychosexual development , medicine , bibliotherapy , reproductive health , human sexuality , population , randomized controlled trial , health care , sexual dysfunction , family medicine , physical therapy , clinical psychology , psychology , nursing , psychiatry , developmental psychology , surgery , gender studies , environmental health , sociology , economics , economic growth
Abstract Purpose This pilot study aimed to obtain feedback on the feasibility, safety and acceptability of a psychosexual rehabilitation booklet developed for women undergoing pelvic radiation therapy ( PRT ) and to explore women's sexual, informational and supportive care needs post‐ PRT rehabilitation. Methods Twenty women treated with PRT for gynaecological or anorectal cancer within the last 5 years, who had received vaginal dilators, provided feedback on the format, content and utility of the booklet and discussed their post‐treatment information needs, via a semi‐structured phone interview. Women completed standardized ( HADS , IES ‐ R ) and study‐specific scales to characterize psychological status of the sample and to assess participants' booklet knowledge and feedback, respectively. Results The booklet was perceived as very helpful, informative and not distressing, providing additional information to that discussed with clinicians. After reading the booklet, women had good understanding of strategies to reduce the sexual impact of PRT . Many women reported that discussion of sexuality was often avoided during consultations, despite them experiencing distressing sexual experiences and difficulties post‐ PRT . Conclusions This novel resource which addresses an important component of post‐pelvic radiation care appears acceptable and highly valued. Findings have highlighted a need for sexual health communication training for clinicians who treat this population so that they can initiate conversations about vaginal health and sexual health in an informed and comfortable manner. The impact of the revised booklet on psychosexual and clinical outcomes is being evaluated in a multicentre RCT .