Open AccessMismatch between health‐care professionals' and patients' views on a diabetes patient decision aid: a qualitative study
Author(s) -
Lee Ping Yein,
Khoo Ee Ming,
Low Wah Yun,
Lee Yew Kong,
Abdullah Khatijah Lim,
Azmi Syahidatul Akmal,
Ng Chirk Jenn
Publication year - 2016
Publication title -
health expectations
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.314
H-Index - 74
eISSN - 1369-7625
pISSN - 1369-6513
DOI - 10.1111/hex.12366
Subject(s) - qualitative research , health professionals , health care , patient participation , nursing , psychology , medicine , decision aids , medline , patient care , patient centered care , medical education , alternative medicine , sociology , social science , pathology , economics , economic growth , political science , law
Background Malaysia is an Asian country with population of diverse culture and health perceptions. Patient decision aid ( PDA ) is a new tool in Malaysia. Patients' and health‐care professionals' ( HCP s) expectation of a PDA is unknown. Aim We aimed to explore patients' and health‐care professionals'( HCP s) views on the information needed in a patient decision aid ( PDA ) on insulin initiation developed for patients with type 2 diabetes mellitus (T2 DM ). Design We used a qualitative design and thematic approach. Setting Three main primary health‐care settings in Malaysia: public university‐based primary care clinics, public health‐care clinics and private general practices. Method We conducted focus groups and one‐to‐one interviews with a purposive sample of health professionals and patients with type 2 diabetes. Results We interviewed 18 patients and 13 HCP s. Patients viewed the content of the PDA as simple and clear. However, HCP s felt the PDA might be difficult for patients with low literacy to understand. HCP s thought the PDA was too lengthy. Nevertheless, patients would prefer more information. HCP s tended to focus on benefits of insulin, while patients wanted to know the impact of insulin on their quality of life and practical issues regarding insulin and its side‐effects. Patients preferred numbers to weigh the risks and benefits of treatment options. HCP s' views that presenting numbers in a PDA would be too complex for patients to understand. Conclusion It is important to consider including issues related to psycho‐social impact of treatment to patients when developing a patient decision aid.