Premium
Registry of patients with congenital bleeding disorders and COVID‐19 in Madrid
Author(s) -
Álvarez Román María Teresa,
Butta Coll Nora,
García Barcenilla Sara,
Pérez González Lourdes,
Plaza Collazo Ivan,
De la Corte Rodríguez Hortensia,
Romero Garrido Jose A.,
Martín Salces Monica,
Rivas Pollmar María Isabel,
Cebanu Tamara,
GonzálezZorrilla Elena,
Acuña Paula,
Monzón Manzano Elena,
Rodríguez Merchán Emérito Carlos,
Trelles Martínez Roberto,
Blanco Bañares María J.,
Gutiérrez Alvariño Mar,
Jiménez Yuste Victor
Publication year - 2020
Publication title -
haemophilia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.213
H-Index - 92
eISSN - 1365-2516
pISSN - 1351-8216
DOI - 10.1111/hae.14089
Subject(s) - medicine , haemophilia , haemophilia a , incidence (geometry) , psychosocial , pediatrics , population , cumulative incidence , disease , von willebrand disease , cohort , von willebrand factor , psychiatry , physics , platelet , environmental health , optics
We present the first registry of patients with congenital bleeding disorders and COVID‐19. The study has been carried out in the Community of Madrid, which has the highest number of cases in Spain. The objective is to understand the incidence of COVID‐19, the course of the disease if it occurs and the psychosocial and occupational impact on this population. Methods We included 345 patients (246 of haemophilia, 69 of von Willebrand Disease, two rare bleeding disorders and 28 carriers of haemophilia). A telephone survey was used to collect the data. Results Forty‐two patients presented symptoms suggestive of infection by COVID‐19, and in six cases, the disease was confirmed by RT‐PCR. The cumulative incidence of our series was 1.73%. It is worth noting the complexity of the management of COVID‐19 in two patients on prophylaxis with non‐factor replacement therapy. Adherence to the prescribed treatment was maintained by 95.5% of patients. Although 94% were independent for daily living activities, 42.4% had a recognized disability and 58% required assistance, provided by the Madrid Haemophilia Association (Ashemadrid) in 75% of cases. Only 4.4% of consultations were held in person. Conclusions Patients with congenital bleeding disorders infected with SARS‐CoV‐2 presented a mild course of the disease that did not require admission. Their identification and treatment by a specialist team from a Haemophilia Treatment Center are essential to make a correct assessment of the risk of haemorrhage/thrombosis. COVID‐19 had a major impact on the psychosocial aspects of these patients which must be remedied with recovery plans.