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Physical activity levels in men with Haemophilia—A single centre UK survey
Author(s) -
Taylor Stephanie,
Room Jonathan,
Barker Karen
Publication year - 2020
Publication title -
haemophilia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.213
H-Index - 92
eISSN - 1365-2516
pISSN - 1351-8216
DOI - 10.1111/hae.14009
Subject(s) - haemophilia , medicine , physical activity , observational study , physical therapy , quality of life (healthcare) , haemophilia a , population , family medicine , gerontology , pediatrics , environmental health , nursing
Historically persons with haemophilia (PWH) were not encouraged to participate in exercise due to the risk of bleeding and the lack of factor products available. This has now changed, and the availability of safe products allows PWH to be active and participate in sports. Studies have found that exercise has a positive effect on pain, joint health and movement with PWH. Aim To record the amount and types of physical activity undertaken by a haemophilia population at a single treatment centre. Methods An observational cross‐sectional study to assess physical activity and quality of life of all registered patients over the age of 18 at the Oxford Haemophilia and Thrombosis Centre. Participants were posted questionnaires including the International Physical activity Questionnaire (IPAQ), Haemophilia Activity List (HAL), EQ‐5D‐5L and asked to list their physical activities. Results A total of 256 questionnaires were sent, with a 40% response rate for severe and 28% for mild patients. 85% met the UK physical activity guidelines. Sedentary behaviour for an average weekday was 6.4 hours, and weekends were 5.3 hours. Joint disease and severity type influenced the amount of activity undertaken, together with values for HAL and EQ‐5D‐5L. Twenty two types of activities were listed. Conclusion It is encouraging to see the amount of physical activity PWH participate in, however, time spent in a sedentary state needs monitoring. PWH want to be active and the challenge for caregivers is to find activities they can do and strategies to maintain participation.