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RCT – subjective physical performance and quality of life after a 6‐month programmed sports therapy (PST) in patients with haemophilia
Author(s) -
Runkel B.,
Von Mackensen S.,
Hilberg T.
Publication year - 2017
Publication title -
haemophilia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.213
H-Index - 92
eISSN - 1365-2516
pISSN - 1351-8216
DOI - 10.1111/hae.13079
Subject(s) - medicine , haemophilia , physical therapy , randomized controlled trial , quality of life (healthcare) , intervention (counseling) , feeling , pediatrics , psychiatry , nursing , psychology , social psychology
Musculoskeletal bleedings lead to limitations in the locomotor system and consequently, in health‐related quality of life ( HRQ oL) in patients with haemophilia (PwH). Sports therapy is increasingly recommended to improve their physical performance. Until today, randomised controlled studies investigating changes in physical performance in PwH are rare. Aim This study investigates the impact of programmed sports therapy on the subjective physical performance and the HRQ oL in PwH. Methods A randomised controlled trial (RCT) was conducted with a training intervention for over 6 months. For this purpose, 64 PwH with moderate ( n = 5) or severe ( n = 59) haemophilia A ( n = 57) or B ( n = 7) were randomised into two groups – intervention ( IG ) or control group ( CG ). The HRQ oL was assessed with the SF ‐36 questionnaire and the disease‐specific Haem‐A‐QoL before and after the intervention. The subjective physical performance was tested by the HEP ‐Test‐Q. Results After the 6‐month training intervention, PwH in the IG subjectively reported significant better ‘endurance’ ( P = 0.000) in the HEP ‐Test‐Q compared to the CG . In the SF ‐36, a significant difference in the domains ‘general health perceptions’ ( P = 0.005) and ‘mental health’ ( P = 0.001) was detected. The haemophilia‐specific HRQ oL questionnaire showed a significant improvement in the dimensions ‘feeling’ ( P = 0.049), ‘work’ ( P = 0.046) and ‘family’ ( P = 0.040). Conclusion In the first RCT evaluating the impact of a 6‐month training intervention on the subjective perception of PwH, an increase in subjective physical performance and some domains of HRQ oL was demonstrated in the IG . Specific sports therapy should be included into the comprehensive treatment under supervision and monitoring by experienced staff.