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Common data elements for epilepsy mobile health systems
Author(s) -
Goldenholz Daniel M.,
Moss Robert,
Jost David A.,
Crone Nathan E.,
Krauss Gregory,
Picard Rosalind,
Caborni Chiara,
Cavazos Jose E.,
Hixson John,
Loddenkemper Tobias,
Salazar Tracy Dixon,
Lubbers Laura,
HarteHargrove Lauren C.,
Whittemore Vicky,
DuunHenriksen Jonas,
Dolan Eric,
Kasturia Nitish,
Oberemk Mark,
Cook Mark J.,
Lehmkuhle Mark,
Sperling Michael R.,
Shafer Patricia O.
Publication year - 2018
Publication title -
epilepsia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.687
H-Index - 191
eISSN - 1528-1167
pISSN - 0013-9580
DOI - 10.1111/epi.14066
Subject(s) - epilepsy , expansive , flexibility (engineering) , interoperability , medicine , computer science , internet privacy , world wide web , psychiatry , statistics , materials science , compressive strength , mathematics , composite material
Summary Objective Common data elements ( CDEs ) are currently unavailable for mobile health ( mH ealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry‐wide standards for mH ealth epilepsy data. Methods Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results A consensus statement is presented for epilepsy mH ealth CDE s. Significance Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDE s, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mH ealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.