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Cancer during pregnancy: A qualitative study of healthcare experiences of Australian women
Author(s) -
Stafford Lesley,
Sinclair Michelle,
Gerber Katrin,
Collins Leah,
Newman Louise,
Saunders Christobel,
Ives Angela,
Mason Kylie D.,
Peate Michelle,
Lippey Jocelyn,
Umstad Mark P.,
Shanahan Kerry,
Little Ruth
Publication year - 2021
Publication title -
european journal of cancer care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.849
H-Index - 67
eISSN - 1365-2354
pISSN - 0961-5423
DOI - 10.1111/ecc.13425
Subject(s) - psychosocial , medicine , health care , nursing , family medicine , qualitative research , private sector , public sector , population , public health , psychiatry , environmental health , social science , economy , sociology , economics , economic growth
Objectives To identify features enhancing the quality of healthcare experiences for women with gestational cancer, and explore the impact of the heterogeneous Australian healthcare system on those experiences. Methods Semi‐structured, qualitative interviews were conducted with women diagnosed with any cancer during pregnancy in the last five years. Recruitment occurred during 2018–2019 via social media and professional, clinical and community networks. Questions related to women's experiences of their healthcare, wellbeing and psychosocial needs. Interviews were analysed thematically. Results Study participants ( n = 23) received treatment in the private sector ( n = 10), public sector ( n = 8), or both ( n = 5). Five interview themes were found: Control over healthcare ; Trust in clinicians , hospitals and systems ; Coordination of care ; An uncommon diagnosis ; Holistic , future ‐ oriented care . Women were most likely to have had a positive healthcare experience when (a)care was well‐coordinated and adjusted to meet their unique needs/challenges, and (b)women perceived their care went beyond their immediate medical needs and encompassed future psychosocial wellbeing, including preparation for postpartum challenges. Conclusion Existing 'usual care' in the public and/or private sector for both the pregnancy and the cancer is insufficient to meet these women's needs. Prioritising psychological wellbeing including psychosocial needs, and communication and planning around fertility and postnatal challenges are essential for this population.