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Information is the key to successful participation for patients receiving surgery for upper gastrointestinal cancer
Author(s) -
Larnebratt Anton,
Fomichov Victoria,
Björnsson Bergthor,
Sandström Per,
Lindhoff Larsson Anna,
Drott Jenny
Publication year - 2019
Publication title -
european journal of cancer care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.849
H-Index - 67
eISSN - 1365-2354
pISSN - 0961-5423
DOI - 10.1111/ecc.12959
Subject(s) - medicine , key (lock) , cancer , general surgery , gastrointestinal cancer , cancer surgery , intensive care medicine , colorectal cancer , ecology , biology
Fast‐track programmes are aimed at improving perioperative care. The purpose of this study was to identify and explore patient participation among patients who had surgery for liver, bile duct or pancreatic cancer and followed a fast‐track programme. A total of 116 questionnaires to investigate patient participation were analysed. Information was important for the patients, as was having the opportunity to ask questions and express personal views. The results showed differences by sex; men responded to a greater extent that they did not want to make decisions as a patient ( p = 0.044) and that they had been motivated to take more responsibility for their future health ( p = 0.011). Patients with pancreatic cancer discussed treatment goals with doctors to a greater extent than did patients with liver cancer ( p = 0.041). Half of the patients perceived that they had not been involved in their care planning after discharge but had a desired to be involved. This seems to be an important point to improve in future care, and also that professionals should be aware of patients’ needs for information and participation, especially at discharge.