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Determine the difficulties of home care in children following haematopoietic stem cell transplantation
Author(s) -
Kılıcarslan Toruner E.,
Altay N.,
Kisecik Z.
Publication year - 2016
Publication title -
european journal of cancer care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.849
H-Index - 67
eISSN - 1365-2354
pISSN - 0961-5423
DOI - 10.1111/ecc.12335
Subject(s) - medicine , transplantation , rash , pediatrics , medical diagnosis , quality of life (healthcare) , hematopoietic stem cell transplantation , intensive care medicine , nursing , pathology
The aim of this study was to determine the difficulties regarding the home care of children following haematopoietic stem cell transplantation ( HSCT ). The sample of the study includes the families of 73 children in a bone marrow transplant unit between 2010 and 2013, Turkey. Data were collected using a form included descriptive information and questions about the difficulties and complications of home care. Families were telephoned and problems they had encountered were recorded. Mann–Whitney U ‐test and the logistic regression analysis were used. The average age of the children was 10.65 ± 5.03 years, the average age was 8.89 ± 4.9 when HSCT was performed, and the average year after HSCT was 1.79 ± 0.74. 41.1% of the children underwent transplantation with diagnoses of anaemia. Primary physical problems that were found after discharge from the hospital were fever (43.8%), decreased appetite (37%), rash (34.2%) and pain (26%). Socially, 43.8% of families reported that their children had difficulties with school. Primary difficulties regarding care and follow‐up were reported as skin care (34.2%) and catheter care (33.3%). In the post‐transplantation period, it is important to provide information about potential problems and care to patients and families in order to increase the quality of life.