Premium
Quality of cancer care in S pain: recommendations of a patients' jury
Author(s) -
Arrighi E.,
Blancafort S.,
Jovell A.J.,
Navarro Rubio M.D.
Publication year - 2015
Publication title -
european journal of cancer care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.849
H-Index - 67
eISSN - 1365-2354
pISSN - 0961-5423
DOI - 10.1111/ecc.12208
Subject(s) - medicine , psychosocial , palliative care , jury , nursing , psychosocial support , quality (philosophy) , family medicine , psychiatry , philosophy , epistemology , political science , law
The aim of the study was to evaluate quality of cancer care in S pain through patient's views, experiences and perceptions; with the purpose of making recommendations to improve cancer care. A modified citizen's jury was organised with the participation of 30 members and four experts as witnesses. For 1 day jurors representing 13 of 17 S panish Autonomous Communities were met to make recommendations for improving the quality of cancer care in S pain. Concerns were identified regarding care fragmentation, test delays, duplications and poor social and emotional support. Some recommendations highlighted the need to improve the access to psycho‐oncology care as well as support in social care and counselling, addressing patients to specific care. Some strategies proposed by the jury included a 24‐h call centre, continuity in palliative care and appropriate follow‐up and support after the end of therapy. In conclusion, the experience of cancer should include access to multiple specialists, effective coordination of care, accurate information about the disease and treatment options, and timely attention to symptoms and psychosocial needs.