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'I wish my health professionals understood that it's not just all about your HbA 1c !'. Qualitative responses from the second Diabetes MILES – Australia (MILES‐2) study
Author(s) -
Litterbach E.,
HolmesTruscott E.,
Pouwer F.,
Speight J.,
Hendrieckx C.
Publication year - 2020
Publication title -
diabetic medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.474
H-Index - 145
eISSN - 1464-5491
pISSN - 0742-3071
DOI - 10.1111/dme.14199
Subject(s) - respondent , medicine , thematic analysis , qualitative research , wish , diabetes mellitus , health professionals , health care , perspective (graphical) , gerontology , diabetes management , type 2 diabetes , nursing , social science , artificial intelligence , sociology , economic growth , political science , anthropology , computer science , law , economics , endocrinology
Aims Optimal diabetes management requires daily selfmanagement. While little time is spent with health professionals, they can have a substantial impact on how a person manages and feels about living with diabetes. The aim of this qualitative study was to explore what people with diabetes wish their health professionals understood about living with diabetes. Methods Thematic analysis was conducted of responses to a single open‐ended question, ‘What do you wish your health professional understood about living with diabetes?’, which was part of the Diabetes MILES‐2 survey, assessing the psychological and behavioural aspects of living with type 1 or type 2 diabetes in Australian adults. Results In total, 1316 responses (56% response rate) were collected, with 1190 responses included for analysis (54% from respondents with type 1 diabetes, 46% from those with type 2 diabetes). Seven major themes emerged; respondents wished their health professional understood: 1) the potential barriers to diabetes management; 2) that it is ‘easier said than done’; 3) the social/emotional impact; 4) that they want, need and deserve more; 5) that judgements, assumptions and negative perspective are not helpful; 6) more about diabetes; and 7) that the respondent is the expert in his/her diabetes. Other comments suggested satisfactory experiences with health professionals, highlighting that some respondents had no wish for their health professional to understand more. Conclusions This study highlights that, although some adults with diabetes are satisfied with their health professionals’ understanding of living with diabetes, many report unmet needs and perceive a lack of person‐centred care from their health professionals.