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Understanding adolescent and parent acceptability and feasibility experience in a large Type 1 diabetes mellitus behavioural trial
Author(s) -
Grossoehme D. H.,
Smith E.,
Standiford D.,
Morwessel N.,
Kichler J.,
Maahs D. M.,
Driscoll K.,
Seid M.
Publication year - 2020
Publication title -
diabetic medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.474
H-Index - 145
eISSN - 1464-5491
pISSN - 0742-3071
DOI - 10.1111/dme.13913
Subject(s) - medicine , psychological intervention , thematic analysis , intervention (counseling) , randomized controlled trial , perception , research design , clinical psychology , diabetes management , type 2 diabetes , qualitative research , diabetes mellitus , nursing , psychology , surgery , social science , neuroscience , sociology , endocrinology
Aims Using an 18‐month, multisite randomized control trial as an exemplar, the aim of this study was to identify themes related to adolescent and parental feasibility and acceptability for participation in large behavioural trials designed to improve adolescents’ Type 1 diabetes self‐management. Methods Thematic analysis methodology was used to develop themes describing factors related to acceptability and feasibility. Results Based on a sample of interviews ( N = 72), factors contributing to intervention acceptability and feasibility were identified. Aspects of acceptability included: a framework for goal‐setting, the coach as a non‐judgemental listener, perception of an ongoing benefit to participation and the delivery mode. Aspects of feasibility included: participants’ altruism to help adolescents with Type 1 diabetes; pre‐enrolment preparation for intervention content and duration; and the option of remote intervention delivery via telephone or video, which minimized travel time and costs. In addition, participants described positive outcomes including improvements in behaviour, Type 1 diabetes self‐management behaviours and parent–adolescent communication, and emotion–attitude changes. Participants also described potential revisions that may inform future trials. Conclusions Acceptability and feasibility of behavioural interventions with adolescents with chronic illness have multifactorial dimensions. While empowering adolescent self‐management, parental support is also an under‐appreciated aspect to consider. Potential revisions were identified for subsequent behavioural trials.