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Comparison of traditional and novel indicators of cardiovascular health and physical activity levels in adolescents and adults with cerebral palsy between gross motor function levels I and II
Author(s) -
P MCPHEE,
M WONG-PACK,
M MACDONALD,
J OBEID,
B TIMMONS,
J GORTER
Publication year - 2016
Publication title -
developmental medicine and child neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.658
H-Index - 143
eISSN - 1469-8749
pISSN - 0012-1622
DOI - 10.1111/dmcn.83_13224
Subject(s) - cerebral palsy , gross motor skill , physical medicine and rehabilitation , gross motor function classification system , medicine , physical activity , motor function , motor activity , physical therapy , psychology , motor skill , psychiatry
to life experiences and perceptions during visits to a hospitalbased CP specialty clinic between January 2015 and June 2015. Materials/Methods: The CP specialty clinic has been using the parent-report versions of the Pediatric Outcomes Data Collection Instrument (PODCI) since 2011 to evaluate patient QoL. In January 2015, the clinic began asking adolescents to complete the self-reported PODCI version separate from their parents. The PODCI is completed using an iPad and patients with motor limitations are provided assistance by clinic staff. Welch two sample t-tests were applied to examine differences between selfand proxy-reporting of QoL in five PODCI domains and in PODCI global scores. Results: PODCI scores from 50 matched pairs of parents/adolescents with CP at GMFCS levels I (14), II (18), III (11), and IV (7) were examined. Number of participants in middle school, high school, and post-secondary age categories were: 11 to 14 years (35), 15 to 18 years (14) and 19–20 years (1). 84% of the paired samples were from the same clinic visit. There were 29 males and 21 females. Mean self-reported scores were significantly higher than mean parent-reported scores in four domains (p < 0.05, 95% Confidence Interval): Upper Extremity and Physical Function (p = 0.018, 95% CI = 1.56–16.51), Sports and Physical Functioning (p = 0.005, 95%CI = 4.24–23.40), Happiness (p = 0.023, 95%CI = 1.28– 16.59), and Global Functioning (p = 0.018, 95%CI = 1.28– 13.00). Conclusions/Significance: Adolescents perceive a higher quality of life in the domains of upper extremity function, sports function, happiness, and global function relative to their parents’ perceptions. Parent and adolescent perceptions were not significantly different in the domains of transfers/basic mobility and pain/comfort. Selfand parent-reported adolescent PODCI results should be treated separately in clinical settings and in future research. While it is encouraging that adolescents are optimistic about their function, it is important that they convey accurate information about their abilities. Guided and accurate self-reporting will help adolescents receive the necessary support to optimize their function and well being while transitioning to adulthood. I4 Comparison of traditional and novel indicators of cardiovascular health and physical activity levels in adolescents and adults with cerebral palsy between gross motor function levels I and II P MCPHEE, M WONG-PACK, M MACDONALD, J OBEID, B TIMMONS, J GORTER School of Rehabilitation Science, McMaster University, Hamilton, ON, Canada; Bachelor of Health Sciences Honours Program, McMaster University, Burlington, ON, Canada; McMaster University, Hamilton, ON, Canada; Department of Pediatrics, McMaster University, Hamilton, ON, Canada; CanChild Centre for Childhood Disability, Department of Pediatrics at McMaster University McMaster University, Ontario, ON, Canada