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Performance of Upper Limb module for Duchenne muscular dystrophy
Author(s) -
Mayhew Anna G,
Coratti Giorgia,
Mazzone Elena Stacy,
Klingels Katrijn,
James Meredith,
Pane Marika,
Straub Volker,
Goemans Natalie,
Mercuri Eugenio
Publication year - 2020
Publication title -
developmental medicine and child neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.658
H-Index - 143
eISSN - 1469-8749
pISSN - 0012-1622
DOI - 10.1111/dmcn.14361
Subject(s) - rasch model , construct (python library) , duchenne muscular dystrophy , construct validity , measure (data warehouse) , physical medicine and rehabilitation , scale (ratio) , psychology , computer science , medicine , psychometrics , developmental psychology , data mining , physics , quantum mechanics , programming language
Aim To report the differences between Performance of Upper Limb ( PUL ) versions 1.2 and 2.0, compare the measurement ability of the two versions, and compare their longitudinal performance in Duchenne muscular dystrophy. Method Rasch analysis was performed on the dual data from three centres to confirm whether the two scales measure the same construct. Change scores in natural history for the different domains were compared for the two versions. Results Rasch analysis demonstrated that both versions measure the same construct and that the PUL 2.0 was a better fit to the construct of motor performance and better able to detect change at 12 months in all levels of ability than the PUL 1.2. This was also true when change scores were reviewed over 2 years. Interpretation Our results confirm that the PUL 1.2 and 2.0 versions detect change in all domains over 2 years. They also demonstrate that simplifying the original scoring of the PUL 1.2 for the revised PUL 2.0 maintains the validity of the construct and enhances the scale measurement qualities. What this paper adds The original and revised Performance of Upper Limb (PUL) scales measure the same construct. Both scales detected change in all domains over 2 years. The PUL 2.0 enhances the measurement qualities of the scale.