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Bullying in children and adolescents with cerebral palsy and other physical disabilities
Author(s) -
M DELGADO,
H ROBERTS,
A SHIERK,
L SMITH,
N CLEGG,
B TANN,
S BERGER,
M RAK,
D GAEBLER-SPIRA
Publication year - 2016
Publication title -
developmental medicine and child neurology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.658
H-Index - 143
eISSN - 1469-8749
pISSN - 0012-1622
DOI - 10.1111/dmcn.13_13225
Subject(s) - cerebral palsy , medicine , psychology , physical medicine and rehabilitation
services and feel grateful and lucky when they receive them. Parents described their anxiety about the future and feel conflicted about the best use of funds. Despite family-centred care approaches underpinning most disability service frameworks, parents voiced their frustration at the lack of support for their own wellbeing. Specific improvements to the existing model of care include the need for services to be more familycentred, more flexible and responsive to individual need, and to actively connect families to other families and to other agencies. Additionally, parents need more information and guidance to support planning for the future. Conclusions/Significance: Parents need more support in applying for funding and accessing information and want holistic support for their own and their families’ health and wellbeing. This research will inform organisational redesign within the context of the National Disability Insurance Scheme (NDIS), which is an individualised funding model being piloted in Australia. Using qualitative data from parents, as well as staff and children, and costings, a new service model that focuses on the health and wellbeing of children and their families will be developed and evaluated using a randomized controlled trial in 2016.