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Transplant advocacy in the era of the human immunodeficiency virus organ policy equity act
Author(s) -
Steel Jennifer L.,
Gordon Elisa J.,
Dulovich Michelle,
Kingsley Kendal,
Tevar Amit,
Ganesh Swaytha,
Brindley Emily,
Sood Puneet,
Humar Abhinav
Publication year - 2018
Publication title -
clinical transplantation
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.918
H-Index - 76
eISSN - 1399-0012
pISSN - 0902-0063
DOI - 10.1111/ctr.13309
Subject(s) - medicine , transplantation , context (archaeology) , organ transplantation , human immunodeficiency virus (hiv) , informed consent , equity (law) , intensive care medicine , ethical issues , immunology , family medicine , surgery , law , alternative medicine , engineering ethics , pathology , political science , biology , paleontology , engineering
In 2013, the Human Immunodeficiency Virus Organ Policy Equity ( HOPE ) Act was passed to permit the conduct of research on the transplantation of organs from donors infected with human immunodeficiency virus ( HIV ) into recipients who are HIV ‐positive. The HOPE Act workshop had many objectives including the discussion of the ethical issues involved in HIV ‐positive to HIV ‐positive transplantation, the informed consent process, and the role of independent advocates in the context of HIV to HIV transplantation. As of 2018, 22 transplant hospitals are approved, or undergoing approval, to perform HIV ‐positive to HIV ‐positive transplant surgeries, and this number is expected to grow. This study aims to: (i) briefly review the history and research of HIV + transplantation prior to the HOPE Act, (ii) describe the ethical principles supporting the HOPE Act, (iii) characterize the informed consent process, and (iv) provide guidance regarding the role of independent advocates in the context of HIV ‐positive to HIV ‐positive transplantation.