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Establishment of a regional Danish database for patients with a stoma
Author(s) -
Danielsen A. K.,
Christensen B. M.,
Mortensen J.,
Voergaard L. L.,
Herlufsen P.,
Balleby L.
Publication year - 2015
Publication title -
colorectal disease
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.029
H-Index - 89
eISSN - 1463-1318
pISSN - 1462-8910
DOI - 10.1111/codi.12848
Subject(s) - medicine , colostomy , danish , stoma (medicine) , ileostomy , benchmarking , general surgery , database , surgery , linguistics , marketing , computer science , philosophy , business
Aim To present the Danish Stoma Database Capital Region with clinical variables related to stoma creation including colostomy, ileostomy and urostomy. Method The stomatherapists in the Capital Region of Denmark developed a database covering patient identifiers, interventions, conditions, short‐term outcome, long‐term outcome and known major confounders. The completeness of data was validated against the Danish National Patient Register. Results In 2013, five hospitals included data from 1123 patients who were registered during the year. The types of stomas formed from 2007 to 2013 showed a variation reflecting the subspecialization and surgical techniques in the centres. Between 92 and 94% of patients agreed to participate in the standard programme aimed at handling of the stoma and more than 88% of patients having planned surgery had the stoma site marked pre‐operatively. Conclusion The database is fully operational with high data completeness and with data about patients with a stoma from before surgery up to 12 months after surgery. The database provides a solid basis for professional learning, clinical research and benchmarking.