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Quality of life questionnaires in otorhinolaryngology: a systematic overview
Author(s) -
Koenraads S.P.C.,
Aarts M.C.J.,
van der Veen E.L.,
Grolman W.,
Stegeman I.
Publication year - 2016
Publication title -
clinical otolaryngology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.914
H-Index - 68
eISSN - 1749-4486
pISSN - 1749-4478
DOI - 10.1111/coa.12586
Subject(s) - medicine , otorhinolaryngology , quality of life (healthcare) , quality (philosophy) , otorhinolaryngologic diseases , medline , medical physics , family medicine , surgery , nursing , philosophy , epistemology , political science , law
Background The importance of quality of life ( QOL ) as an endpoint and the use of validated QOL questionnaires have increased over time. Objectives To evaluate health‐related quality of life ( HR ‐ QOL ) measurement instruments used in patients in otorhinolaryngology ( ORL ). We aimed to establish the use of QOL questionnaires in ORL over a period of time, establish the use of QOL questionnaires within different domains and determine the use of validated QOL questionnaires. Main out come measures We performed a comprehensive search in PubMed up to 1 January 2014. Articles were included that measured HR ‐ QOL questionnaires in clinical practice in children, adolescents or adults in 42 journals of ORL . Multiple unique QOL questionnaires, organised according to domain, time and survey of validation, were extracted from reported articles. Results Of 2442 articles, we utilised 1196 publications with a total of 2103 QOL questionnaires regarding ORL . We evaluated a variety of 363 unique QOL questionnaires in which 60% ( n = 220) QOL questionnaires had been validated. We found a continuing increase in the amount of articles which used QOL questionnaires since the beginning of the 20th century, while the percentage of validated QOL questionnaires remained the same (76%). Most QOL questionnaires were used in the domains oncology (35%), otology (21%) and rhinology (20%). The domain otology had the largest amount of unique QOL questionnaires ( n = 122). Conclusions We identified and evaluated all unique HR ‐ QOL questionnaires utilised in patients in ORL . Recently, the use of validated and non‐validated HR ‐ QOL questionnaires has increased within all domains of ORL . The assessment of QOL has become an important outcome measure in clinical practice, in medical research and for healthcare organisations.