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The Principles and Ethics of Including Children with Disability in Child Research
Author(s) -
Jenkin Elena,
Wilson Erin,
Campain Robert,
Clarke Matthew
Publication year - 2020
Publication title -
children and society
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.538
H-Index - 58
eISSN - 1099-0860
pISSN - 0951-0605
DOI - 10.1111/chso.12356
Subject(s) - new guinea , set (abstract data type) , action research , action (physics) , engineering ethics , sociology , medical education , psychology , pedagogy , medicine , computer science , engineering , programming language , ethnology , physics , quantum mechanics
This paper provides a set of principles and ethics, developed in collaboration between Pacific‐ and Australian‐based researchers, to guide research practice in a project enabling the self‐reporting of children with disability in Vanuatu and Papua New Guinea (PNG). The paper presents both a summary of academic literature relating to these principles and ethics, as well as their succinct ‘translation’ into a set of action statements for researchers working with children with disability. The paper offers a base for further development by others to guide research practice and foster the autonomous participation of children with disability in developing countries.