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French‐style genetics v. 2.0: The “e‐CohortE” project
Author(s) -
Stoeklé HenriCorto,
Bollet Marc,
Cobat Aurélie,
Charlier Philippe,
Bloch Oudy Ch.,
Flatot Jérôme,
Draghi Clément,
Tolyan Valérie,
Hervé Christian,
Desvaux Pierre,
Uzan Laurent,
Grynberg Michaël,
Alcaïs Alexandre,
Tolédano Alain,
Vogt Guillaume
Publication year - 2019
Publication title -
clinical genetics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.543
H-Index - 102
eISSN - 1399-0004
pISSN - 0009-9163
DOI - 10.1111/cge.13595
Subject(s) - cohort , style (visual arts) , subject (documents) , medical genetics , genealogy , demography , medicine , history , genetics , sociology , biology , library science , computer science , gene , archaeology
In the digital age, a genetics cohort has become much more than a simple means of determining the cause of a disease. Two‐sided markets, of which 23andMe, Ancestry DNA and MyHeritage are the best known, have showed this perfectly over the last few years: a cohort has become a means of producing massive amounts of data for medical, scientific and commercial exploitation, and for genetic use in particular. French law does not currently allow these foreign private companies to develop on French national territory and also forbids the creation of similar entities in France. However, at least in theory, this same law does not preclude the creation of new types of cohorts in France inspired by the success of two‐sided markets but retaining features specific to the French healthcare management system. We propose an optimal solution for France, for genomic studies associated with multi‐subject questionnaires, still purely theoretical for the moment: the development, with no need for any change in the law, of France's own version of “Genetics v.2.0”: “e‐CohortE.”