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Gynecologic cancer screening and communication with health care providers in women with Lynch syndrome
Author(s) -
BurtonChase A.M.,
Hovick S.R.,
Sun C.C.,
BoydRogers S.,
Lynch P.M.,
Lu K.H.,
Peterson S.K.
Publication year - 2014
Publication title -
clinical genetics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.543
H-Index - 102
eISSN - 1399-0004
pISSN - 0009-9163
DOI - 10.1111/cge.12246
Subject(s) - lynch syndrome , medicine , endometrial cancer , gynecologic cancer , gynecology , family medicine , cancer screening , family history , cancer , obstetrics , ovarian cancer , colorectal cancer , dna mismatch repair
We evaluated knowledge of gynecologic cancer screening recommendations, screening behaviors, and communication with providers among women with Lynch syndrome ( LS ). Women aged ≥25 years who were at risk for LS ‐associated cancers completed a semi‐structured interview and a questionnaire. Of 74 participants (mean age 40 years), 61% knew the appropriate age to begin screening, 75–80% correctly identified the recommended screening frequency, and 84% reported no previous screening endometrial biopsy. Women initiated discussions with their providers about their LS cancer risks, but many used nonspecific terms or relied on family history. Most were not offered high‐risk screening options. While many women were aware of risk‐appropriate LS screening guidelines, adherence was suboptimal. Improving communication between women and their providers regarding LS ‐related gynecologic cancer risk and screening options may help improve adherence.