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P apua N ew G uinea vision‐specific quality of life questionnaire: a new patient‐reported outcome instrument to assess the impact of impaired vision
Author(s) -
Paudel Prakash,
Khadka Jyoti,
Burnett Anthea,
Hani Yvonne,
Naduvilath Thomas,
Fricke Tim R
Publication year - 2015
Publication title -
clinical and experimental ophthalmology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.3
H-Index - 74
eISSN - 1442-9071
pISSN - 1442-6404
DOI - 10.1111/ceo.12413
Subject(s) - medicine , quality of life (healthcare) , univariate analysis , multivariate analysis , visual impairment , physical therapy , audiology , psychiatry , nursing
Abstract Background The aim of this study was to develop and validate a new vision‐specific quality of life ( VS QoL ) instrument and to assess the impact of vision impairment and eye disease on the quality of life of adults in P apua N ew G uinea ( PNG ). Design This study was designed as community based cross‐sectional. Participants Six hundred fourteen adults aged 18 and above were included in this study. Methods Focus groups and interviews guided development of a 41‐item instrument. Two valid subscales of the instrument were obtained using pilot data after an iterative item reduction process guided by R asch‐based parameters. The person measures (in logits) of 614 participants were used to assess quality of life using univariate and multivariate regression analysis. Main Outcome Measures R asch logits. Results R asch analysis confirmed a 17‐item instrument containing an 8‐item activity limitation subscale and a 9‐item well‐being subscale. Both subscales were unidimensional and demonstrated good fit statistics, measurement precisions and absence of significant differential item functioning. A consistent deterioration in vision‐specific quality of life was independently and significantly associated with levels of vision. Severity of vision impairment and ocular morbidity were independently associated with activity limitation and emotional well‐being. Participants with refractive error had lower quality of life score than those with no ocular abnormality but higher score than those with cataract and other eye diseases. Conclusions The 17‐item PNG ‐ VS QoL instrument is a valid and reliable instrument for the assessment of impact of impaired vision on quality of life in PNG . Vision‐specific quality of life was significantly worse among participants who were older and less‐educated, had lower income and have had ocular morbidities.