The United Kingdom Primary Immune Deficiency (UKPID) registry 2012 to 2017 | Zendy

Shillitoe B. | Zendy; Bangs C. | Zendy; Guzman D. | Zendy; Gennery A. R. | Zendy; Longhurst H. J. | Zendy; Slatter M. | Zendy; Edgar D. M. | Zendy; Thomas M. | Zendy; Worth A. | Zendy; Huissoon A. | Zendy; Arkwright P. D. | Zendy; Jolles S. | Zendy; Bourne H. | Zendy; Alachkar H. | Zendy; Savic S. | Zendy; Kumararatne D. S. | Zendy; Patel S. | Zendy; Baxendale H. | Zendy; Noorani S. | Zendy; Yong P. F. K. | Zendy; Waruiru C. | Zendy; Pavaladurai V. | Zendy; Kelleher P. | Zendy; Herriot R. | Zendy; Bernatonienne J. | Zendy; Bhole M. | Zendy; Steele C. | Zendy; Hayman G. | Zendy; Richter A. | Zendy; Gompels M. | Zendy; Chopra C. | Zendy; Garcez T. | Zendy; Buckland M. | Zendy

AI Assistant Blog Pricing

Home ZAIA Blog

Open Access

The United Kingdom Primary Immune Deficiency (UKPID) registry 2012 to 2017

Author(s) -

Shillitoe B.,

Bangs C.,

Guzman D.,

Gennery A. R.,

Longhurst H. J.,

Slatter M.,

Edgar D. M.,

Thomas M.,

Worth A.,

Huissoon A.,

Arkwright P. D.,

Jolles S.,

Bourne H.,

Alachkar H.,

Savic S.,

Kumararatne D. S.,

Patel S.,

Baxendale H.,

Noorani S.,

Yong P. F. K.,

Waruiru C.,

Pavaladurai V.,

Kelleher P.,

Herriot R.,

Bernatonienne J.,

Bhole M.,

Steele C.,

Hayman G.,

Richter A.,

Gompels M.,

Chopra C.,

Garcez T.,

Buckland M.

Publication year - 2018

Publication title -

clinical & experimental immunology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.329

H-Index - 135

eISSN - 1365-2249

pISSN - 0009-9104

DOI - 10.1111/cei.13125

Subject(s) - medicine , disease registry , incidence (geometry) , primary immunodeficiency , pediatrics , disease , family medicine , immunology , physics , optics

Summary This is the second report of the United Kingdom Primary Immunodeficiency (UKPID) registry. The registry will be a decade old in 2018 and, as of August 2017, had recruited 4758 patients encompassing 97% of immunology centres within the United Kingdom. This represents a doubling of recruitment into the registry since we reported on 2229 patients included in our first report of 2013. Minimum PID prevalence in the United Kingdom is currently 5·90/100 000 and an average incidence of PID between 1980 and 2000 of 7·6 cases per 100 000 UK live births. Data are presented on the frequency of diseases recorded, disease prevalence, diagnostic delay and treatment modality, including haematopoietic stem cell transplantation (HSCT) and gene therapy. The registry provides valuable information to clinicians, researchers, service commissioners and industry alike on PID within the United Kingdom, which may not otherwise be available without the existence of a well‐established registry.

The content you want is available to Zendy users.

Already have an account? Click here to sign in.

Having issues? You can contact us here

Accelerating Research